Typical Monday!!! :(
We headed off the the hospital bright and early this morning hoping to get everything done. Jess had been fasting all night for her test so she was hungry and thirsty by the time we got there. She got all of her scans and then we went to the blood/chemo room to get her picc lines changed and get her blood drawn and read. Things were going well until I got a phone call, the scans somehow got messed up, so we had to run back to get them done again before the dye in her system wore off. Then we had to jam back to get her spinal fluid drawn and have her chemo put in. For some reason they poked and prodded at her forever and they couldn't get any fluid out of her spine, since she was dehydrated. The doctor wasn't going to get the results in time from her scans so they decided to set it all up again for Weds at 11! They are going to draw Shane's blood and run test on him to see if he is going to the the "just in case" donor. He is missing school and there is nothing that I can do about all of this and it is driving me crazy!! I just read this to her and her Dad (and he says it is doing the same to him!) lol. But we did have a couple good things happen today. The insurance approved Shane getting tested and her blood still came up weak, but not bad! So please keep her in your prayers, that the scans come out good and she has the strength to endure all of this!!
Love to all,
Cindi
Monday, November 30, 2009
Sunday, November 29, 2009
November 29th
Hello to All!
Hope that everyone had a wonderful holiday! We are still up in Bend and are heading to Portland this afternoon. We had Thanksgiving at my sister's in-law's house (Mike and Sally's). It was gorgeous and the food was incredible. Jess had it rough there, because of the steroids (we are thinking). I know that they are wonderful for the cancer, but they are hard on her (her heart feels erratic). The night before last she felt that she might want to go the ER but we ended up giving her one of the pills that help her sleep and it calmed her heart down. Hope that they will be able to wean her off some of the pills after the results we get on Tuesday. She was really scared and so am I. Pat came along for the support for this trip. Shane also came as they hope that he will be able to get tests done this week. It will be nice to know if he is a match. That is all for now.
Please keep her in your prayers as we have a big next couple of days.
Love you all,
Cindi
Hope that everyone had a wonderful holiday! We are still up in Bend and are heading to Portland this afternoon. We had Thanksgiving at my sister's in-law's house (Mike and Sally's). It was gorgeous and the food was incredible. Jess had it rough there, because of the steroids (we are thinking). I know that they are wonderful for the cancer, but they are hard on her (her heart feels erratic). The night before last she felt that she might want to go the ER but we ended up giving her one of the pills that help her sleep and it calmed her heart down. Hope that they will be able to wean her off some of the pills after the results we get on Tuesday. She was really scared and so am I. Pat came along for the support for this trip. Shane also came as they hope that he will be able to get tests done this week. It will be nice to know if he is a match. That is all for now.
Please keep her in your prayers as we have a big next couple of days.
Love you all,
Cindi
Wednesday, November 25, 2009
Thanksgiving, November 25th
Hello All,
Not much to report today. Jess is still the same. Super tired and sleeping lots. I will get back to you on Friday or Saturday, unless something pops up that I need to let you all know about. Thanks so much for your positive thoughts, energy, fundraising, and my mental support :) and especially all of the prayers!!!
We have a super big next week so please keep her in your thoughts over the holiday. Have a Happy Thanksgiving!
Please take care!!
XOXO Cindi
Not much to report today. Jess is still the same. Super tired and sleeping lots. I will get back to you on Friday or Saturday, unless something pops up that I need to let you all know about. Thanks so much for your positive thoughts, energy, fundraising, and my mental support :) and especially all of the prayers!!!
We have a super big next week so please keep her in your thoughts over the holiday. Have a Happy Thanksgiving!
Please take care!!
XOXO Cindi
Tuesday, November 24, 2009
November 24th
Hi all!!
Back home in Klamath. Was a really long trip for everyone. Jess was really tired and was nauseous on the way down. We usually try to stay up there after chemo for a day or two, but since Thanksgiving is around the corner we wanted to come home. Jess took some medicine for nausea and for her temperature and basically slept the entire day. It was really nice to see her resting. We are going to stay home until Thurs and head up to Bend for dinner with the family. After that we will most likely head to Portland as Jess has a really big day on the following Monday. They will do lots of tests and we will get results a couple days later.
Take Care and Love to All!! Please keep up the prayers as we are hoping for good news next week!!!
XOXO Cindi
Back home in Klamath. Was a really long trip for everyone. Jess was really tired and was nauseous on the way down. We usually try to stay up there after chemo for a day or two, but since Thanksgiving is around the corner we wanted to come home. Jess took some medicine for nausea and for her temperature and basically slept the entire day. It was really nice to see her resting. We are going to stay home until Thurs and head up to Bend for dinner with the family. After that we will most likely head to Portland as Jess has a really big day on the following Monday. They will do lots of tests and we will get results a couple days later.
Take Care and Love to All!! Please keep up the prayers as we are hoping for good news next week!!!
XOXO Cindi
Monday, November 23, 2009
Chemo Day, November 23rd
Jess slept pretty well last night. Her heart was racing from the steroids, but she took some sleeping pills and was out. She woke up starving and her heart was racing, but she took a nice bath and I got her some breakfast so she would be ready to go to the hospital. When we got there everything went smoothly. We were there at 1230 and back at the hotel by 430. Still a long day for Jess though. They took her blood and gave her anti nausea medicine, and we had to wait for the test results and meds to kick in before they start her chemo. She received two rounds today. Her counts have started to go down some, but not very bad, but that is why she is getting tired easier. Her kidneys were still not where they should be, so our goal is to help make sure she drinks lots of water. She is now napping comfortably and it is always nice to have her resting in bed. That is all for now.
Thanks for all the prayers!
Love to all,
Cindi
Thanks for all the prayers!
Love to all,
Cindi
Sunday, November 22, 2009
November 22nd, Back in Portland
Good Evening!!
Sorry it took so long to get the blog going this weekend. We were all super busy and had a lot going on. Plus we just got settled in our hotel in Portland so it was a long day and it was a long snowy wintry trip. We are all extremely wore out. Jess took a couple long naps along the way. She got a little sick on the trip and had to take an anti nausea pill. Her head was feeling a little woozy too, she said it was from the motion of the pickup. I was really glad when we got here and she could get into bed and relax. We kept taking her temperature but it stayed good all day and I was really happy. She has blood tests and two rounds of chemo tomorrow so it will be another long day. Take care and thanks for reading today.
Keep up the prayers please, as we have a couple more long weeks until we get to hear what is next.
Love,
Cindi
Sorry it took so long to get the blog going this weekend. We were all super busy and had a lot going on. Plus we just got settled in our hotel in Portland so it was a long day and it was a long snowy wintry trip. We are all extremely wore out. Jess took a couple long naps along the way. She got a little sick on the trip and had to take an anti nausea pill. Her head was feeling a little woozy too, she said it was from the motion of the pickup. I was really glad when we got here and she could get into bed and relax. We kept taking her temperature but it stayed good all day and I was really happy. She has blood tests and two rounds of chemo tomorrow so it will be another long day. Take care and thanks for reading today.
Keep up the prayers please, as we have a couple more long weeks until we get to hear what is next.
Love,
Cindi
November 21st
Bummer day for Shane!!
Jess went to Jon's parent's house last night to visit and stay the night. So our house seemed really empty. She said everything went well and it felt good to get up early and get ready to go to Shane's game. Bonanza School had it set up again so Jess and Jon could bring her pickup on by the field so she could watch the game from there. It worked out really well. The weather was amazing considering it was supposed to be snowing all day. It was cold but the sun was shining and Jess said that it felt really nice to be outside for a little bit. :) She wore her mask and came to visit with the fans for a while, they were really glad to see and talk to her. By the end of the game she was exhausted and ready for a nap. The boys played a good last game considering they were playing an unbeaten team. They lost, but I was very proud of them, and sad for the seniors. Shane said that it really hit him after the game, since it was his last game of football. Jess is sleeping on the couch and I need to figure out dinner. Please keep us in your prayers as we head back up to Portland on Sunday morning.
Love to all,
Cindi
Jess went to Jon's parent's house last night to visit and stay the night. So our house seemed really empty. She said everything went well and it felt good to get up early and get ready to go to Shane's game. Bonanza School had it set up again so Jess and Jon could bring her pickup on by the field so she could watch the game from there. It worked out really well. The weather was amazing considering it was supposed to be snowing all day. It was cold but the sun was shining and Jess said that it felt really nice to be outside for a little bit. :) She wore her mask and came to visit with the fans for a while, they were really glad to see and talk to her. By the end of the game she was exhausted and ready for a nap. The boys played a good last game considering they were playing an unbeaten team. They lost, but I was very proud of them, and sad for the seniors. Shane said that it really hit him after the game, since it was his last game of football. Jess is sleeping on the couch and I need to figure out dinner. Please keep us in your prayers as we head back up to Portland on Sunday morning.
Love to all,
Cindi
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