Saturday, July 31, 2010

Oh on that anniversary party there is also a RSVP 541-882-8235 or 541-273-5599

July 31st

Well Jess just got done with her first week of chemo pills and steroids...Ive noticed that she seems a little more tired even though the steroids should be picking her up... But we know that her white blood count has been low so I would imagine that it is now after this last week. But we have to go in Monday to get it checked so that will be good... But also on Monday she has to take another chemo pill but it is only on Monday. It is actually the type of chemo that they put in her spine so this will be her first time taking it in pill form too. Wow, she sure has had a little bit of everything. It just seems to me and I'm sure to all of you that the maintenance schedule of chemo seems to be a little stiff. I had just figured that it would be easier on her... But I will sure let you guys all know what it up on Monday... Thanks so much for checking up on her. Please keep her in your prayers :) Love to all, Cindi



P.S. Since I know that a lot of you that read this is family I decided to put this on here too :) Thanks!


Bill & Maryann Kelly (maiden name Honeymann) are celebrating their 50th wedding anniversary this August 22nd. They were married at St Marys Church, New England, North Dakota. Bill retired from Burlington Northern and Maryann has been a stay at home mom. They have lived in Klamath County for the last 40 years. They are both members at St Pius X church, Knights of Columbus and Catholic Daughters. They have 4 children and 5 grandchildren. Come celebrate with them at Mia's & Pia's Pizzeria on Sunday August 22nd in the patio from 5-8pm. It is a no host party. Cake & punch will be served. In lieu of gifts, Bill & Maryann have asked for you to donate to their granddaughter Jessica Kelly-Unruh at South Valley Bank on 6th St in Klamath Falls who is battling Acute Lymphoblastic Lymphoma. Thank you!

Wednesday, July 28, 2010

July 28th

Morning!

Well I feel like yesterday was a mentally and physically tiring day! We got over in Medford about 11 for Jess's spinal. The tech came out to get her and this one actually invited me back there to sit with her. I figured that they would kick me out when the doctor came to do the procedure but they didn't. So I'm the bad person cause I really didn't want to be back there and isn't that horrible? It makes me mad at myself even now. I just hate to see her in pain so I didn't want to be there.... It is easy to sit out in the waiting room isn't it?? But enough about my cowardice. They ended up taking out fluid to look at the cells. That always makes me nervous cause they are checking for cancer cells in the brain... and then they put the chemo in. She said that it went pretty well. I heard her tell them that it hurt once and so he gave her another pain shot (which they hurt a lot) so all in all she said that it was a good spinal and I have to say that I really like the doctor a lot. So we don't have to go back over there until the 23rd, but then it is another spinal and chemo :( Until then she is on her chemo pills and then next week she starts another chemo pill and her steriods. So she still has a long road ahead of her. Please keep her in your prayers. Love, Cindi

Monday, July 26, 2010

July 26th

Hi All!!

Just got home from chemo.. Jess wasn't feeling to well so hopefully she feels better tomorrow for the trip and the spinal. She was feeling extremely tired and had a major headache. She wasn't to happy with talking to her doctor because she doesn't want to take her steroids at all anymore but the doctor says that she has to because that is part of the prodicol. Plus, when I talked to the pharmacist he explained that they were important with taking them with the chemo pills that she has to take. He says that she will feel better with taking them.. So I guess she is. She just doesn't want to gain anymore weight but the doctor said that weight isn't anything with what she has accomplished so far. So I tried to talk to her on the way home but I don't know if I did any good or not...she was pretty quiet. So she had her IV chemo today and she has to start her pills tonight. Yay! Not! Her white blood count of course was low again so I don't know anymore... So she has her spinal tomorrow and then chemo pills for the next 84 days!! After tomorrow though we don't have to go back to Medford until the 23rd unless something is wrong. Every Monday we have to go in for a blood draw in Klamath to keep an eye on it. So I will let you all know how she does tomorrow. Please keep her in your prayers and thank so much for checking up on her. Love to all, Cindi

Thursday, July 22, 2010

July 22

Well the doctor from Medford called this morning and said that the shots had done their work and her white cells were really high so as of Monday she had to have her IV chemo and the Tues she has to have another spinal :( I think that she might also have to start her chemo pills too. Not sure right now and I don't have the prodicol here to check. So she is feeling really good right now so hopefully we can keep that up. She has been trying to eat healthier and do some alternative methods to keep herself up. So we will see how that goes. But I'm off for now. I will let you all know how she is doing. Please keep her in your prayers! Love to all, Cindi

Tuesday, July 20, 2010

July 20th

Good Morning Everyone!

Well we went in for Jess's blood test yesterday and then we had a couple of stops to make before we came home. She seemed a little tired so I felt a little concerned and wanted to get her back home. We were home for about an hour when the doctor called from Medford and said that she had to have a bone marrow shot and then another today. So we headed back up to the hospital and had the one shot and it actually went pretty fast so that was nice. So today we have to head up there at 11am for her second one. I'm not sure what is going to happen next. I would imagine that she would have to have more blood tests tomorrow and then the next day to see how she is doing. So I will let you all know what we find out. Her poor body is just so tired but I know that I have told you all this numerous times... Well thanks for checking in and please keep her in your prayers. Love, Cindi

Sunday, July 18, 2010

July 18th

My Niece's Birthday!!! :)

Hi to all, Just wanted to drop you a quick line and let you know how Jess is doing. She has been super tired and fatigued. Don't know if it was just from the stress of the trip or if it is her white cell count. So I guess that tomorrows blood test will let us know. She also seems to be fighting a bladder infection so Im sure that that tires her out. I will let you know tomorrow night if we find out anything more. Please keep her in your prayers. Love to all, Cindi

Friday, July 16, 2010

July 16th

Sorry about that last post in yellow. My computer shows the background in green so I can read it fine... but after a couple of you said that it was hard to read I happen to get on the blog with Jessi's laptop and it was a kinda gray background and wow was it hard to read.. lol Soooo.. Well we got home about 8pm tonight. It seemed like a long drive. Got a call from Jessi's Medford doctor on the way home. It seems like her white blood count is super low again... figures! Portland apologized for not looking at it closer so they called Medford to let them know. It seems like it always hits about a week after chemo and it really has never picked up on its own so it really didn't surprise me at all to hear this. So we have to go into Klamath Monday morning to get blood drawn again to check it. She might need those bone marrow shots again. It kinda sucks to get good news and then we have to keep going like we have before. If everything looks good this Monday, then next Monday she will have to have her IV chemo plus ANOTHER spinal!! But we understand why but really don't like it.. So I will let you all know how it goes. She sure is super tired so it would be nice to get a couple of weeks off but who knows.... Oh this is something funny... Jon (Jessi's husband) was watching a show on the Learning channel maybe and it was on bone marrow transplant and he thought that the place look familiar and then the doctor walked in to do the procedure and it was Jessi's doctor from up there... lol Kinda amusing.. :) So he taped it to show Jess... Well I'm off for now. I will let you know how she is doing. Thanks again for all your prayers and positive thoughts! It seems like she will still be needing you all :) Love to all, Cindi

Thursday, July 15, 2010

Portland!!

Hi All!!

Wow, are we beat! Long drive up here and then tests all day yesterday and then blood and doctor visit today. You can't help being a little worried. That doubt I can't just get rid of. I talked to Jess about it and she felt the same. Tests went okay but it was just a long day. We finally got back to the hotel around 8:30 last night. We asked yesterday for the cd's of all of her scans and tests so we had to pick them up today too. There ended up being 7 of them and like 14 pages of written ones. It was interesting to read but also a little nerve racking I feel to read this stuff about your daughter.... The Portland doctor wanted us to get these for the doctors down in Medford. We also had brought up all the chemo and blood tests from Medford and gave them to him. He seemed really excited to have them.. lol Well she is still in remission!! We were really happy to hear it again. We were hoping for no chemo but we knew from before that she was going to have to have a total of 2 years of it. It was cute cause he was worried about Jess hearing this and she basically already knew it. Sooo.. she has to have chemo until November of 2011. They said that because she had had so much cancer in her that that was the reason why and we totally understand. We don't want it coming back. If she would of only had cancer in one spot that she would be done but since she didn't that is why. But he said that it will be lower doses so that she will hopefully be able to live a basically normal life. But it is still spinals, pills and IV pushes so still a little of everything. He said that she could take a couple of weeks off but that was about it. He doesn't want anything to go wrong. He talked all of this over with a pediatrician so it is nice to know that it isn't just his decision. Well I'm off for now. Im so tired all over.. lol If I think of anything else I will tell you all tomorrow. If you guys want to know anything drop me a line. Thanks for keeping her in your prayers. Love you all, Cindi

Tuesday, July 13, 2010

July 13th

Good Morning!!

I just found out that I can change the color of my fonts on these pages so I'm having fun so bear with me... lol So it is Portland today...Excited and nervous, just can't help it. Pat, Rob & Jon are staying home to work and to take care of the animals. We (Jess, Shane & I) are planning on leaving right after lunch so that when we get up there it is hopefully past the rush hour. Jess can't have anything to drink or eat 6 hrs prior to her tests tomorrow at 2pm so I will make sure that she eats before that... We have MRI and PET scans tomorrow, then blood and seeing the doctor about the results on Thurs. I will let you all know asap! Thanks so much. Please keep her in your prayers bunches these next couple of days :) Love to all, Cindi xoxo

Monday, July 12, 2010

July 12th

Well Jess had a super long weekend... She was very happy by last night but also extremely wore out. These horse shows are what she loves to do and she had gotten this new horse last year and really hasn't been able to show him with all that has happened. So even though she hasn't been able to ride him much she still took him this weekend. On Sat he was acting up with her and it made me nervous but she stuck with it. On Sunday we both feel like he redeemed himself with how he acted.. Plus Sunday was her favorite class, western pleasure so that made her really happy and that is the best therapy. :) She came home last night and took a nice long nap.. lol But anyways, I called Portland and confirmed all her tests and appointments this morning so we are already to go tomorrow. Excited and nervous all at once. But I will sure let you guys all know what goes on. Thanks so much for checking in. Please keep her in your prayers. Love to all and God bless, Cindi

Saturday, July 10, 2010

7-10-10

Hi All!! Just a very quick note to just let you all know how everything is going. Jess went to her horse show today but it is just way to hot for her there. She really didn't feel good this afternoon. I don't think that it helped that her horse was acting up. Don't know why he was... Oh well hopefully when we get back from Portland she can get him back into a schedule and get him back on track. I'm not really worried about him at this point..small potatoes considering my life lately.. lol So I just tried to keep Jess hydrated and some food in her stomach so hopefully it would help her some. She is back at it tomorrow so I will be stressed again! I tell ya everyone...it is a fun trip time when we can. We will sure need it. Well I will let you all know how it goes. Please keep her in your prayers. Love to all, Cindi

Thursday, July 8, 2010

7-8-10

Well Jess has been up and down. I think that it is just her having chemo on Tues and then ending the 2 weeks of chemo pills. I think that everyday she will get stronger and stronger. The heat seems to bother her and the doctor had said to try to stay out of it as much as she could but she really wants to ride and get ready for a couple of horse shows so it has been kinda hard to keep her in :) I was just sitting down right before dinner when my phone rang and I could see that it was a call from Portland... I was like oh oh what is up.. It was one of the Physicians Assistants from the hospital up there. She helps out Doctor K up there and she actually gave Jess one of her first spinals.. Yay! lol But she actually called with good news, she said that Jess was tentatively set up for a bone marrow biopsy next Weds with her other tests but when they checked with Doctor K he said that it wasn't necessary! Wow, finally something goes Jess's way this month.. :) She said that he said that since she had no indication of cancer cells in there the first time that there was no reason to do it. When I called Jess to let her know she was so excited! So I just wanted you all to know. I will let you go and thanks for checking up on Jess. Please keep her in your prayers. Love to all, Cindi

Wednesday, July 7, 2010

7-7-10

Good Morning Everyone!!

Well chemo went quick yesterday it seemed...Maybe cause it was the last one!!! YAY!! Well until we find out what she is going to have for the two years of maintenance.. But we feel like we have gotten over a big hurdle. A lot of people asked what is next, what is next but we have no idea and we didn't want to know. We take one prodicol at a time. Don't want to get to far ahead of ourselves. We will find it all out next week in Portland with her head doctor who decides everything. But yesterday seemed like a snap! Her blood was higher than last time but still low than what it should be but with no chemo for a while I'm sure that it will pick itself up pretty quick. Her body just has been so tired from all that it has taken so far. Wow, what a journey.... So the doc in Medford was wondering what was going to be happening in Portland too. I guess that they don't get together much. They kinda do their own thing unless something happens. Medford gets a road map though that is sent down by Portland so they just do that and that is about it or if something happens to Jess they deal with it but they also check in with Portland... Sooo, he brought up that Portland would be doing a bone marrow biopsy to finish things up!!!??? We have never heard of it but he said that that is usually how they finish up..Hmmm.. So I'm not to sure. Jess wasn't very happy to hear of it and said that she didn't want it. It was so painful for her but if Portland wants it and says that it is necessary then I'm sure that she will get it done. :( But I put in a call up there to see what was up. Well I'm off for now. Thanks so much for checking in. I will let you all know how she is doing. Please keep up the prayers. Love, Cindi

Monday, July 5, 2010

July 5th

Good morning all, hope that you had a very good 4th. We went down to Jessi's in-laws and had a really good time. Nice little crowd, good food and lots of laughs :) Jess had a pretty good day. She couldn't get out there and play v-ball so that was a bummer cause I know how much she loves it but that it a little much right now. She did go down and get a gym membership so she can start working out when she can. So that is a good start with also riding her horse. He is a work out. Some people don't realize how much work goes into these pleasure horses. She is always tired after giving him a good workout. Yesterday Jess only started getting kinda sickly after taking her chemo pills. She is usually at home and takes them and heads to bed so we were thinking then she prolly doesn't notice them much that way. But she took them at the party last night cause she has to take them at the same time every night but last night they made her sick for the night. Not enough to throw up but that awful feeling so I felt bad for her. But other than that she had a good night. She can rest up today and then tomorrow we are back off to Medford and chemo... but after that hopefully no more until after we go to Portland!! :) Oh, and I think that she has 3 more days of pills..... not sure cause she kept going off of them when she wasn't doing good. Well I will let you all go. Please keep her in your prayers. Love to all, Cindi

Sunday, July 4, 2010

Happy 4th of July!!

Forgot to tell you all about what happened the other day at Wal-Mart! I only let the pop/beer cans get so full around here before it is time to take them in. So I went in with Shane and Jess. Well of course there was only a couple people in there but all of the bins were full or broken. So Shane left to go tell them and look around. Well they finally get some of them going and Jess and I get started. Plus there is an older guy down at the other end. All of a sudden a older obese greasy woman in a motorized cart is like pushing my cart and telling me to move and I'm telling her that that was is broken and the others they are just getting started so she starts like trying to reach up and throw her plastic bottle in the hole but it just isn't accepting that brand and she keeps trying and trying and mumbling under her breath. So she says to me Go see if that guy is done. I'm like wow rude bitch but I wander down there and tell his whats up and he says that he is almost done so I come back and tell her and she says not him..HIM! and she points right at Jess!! I'm like that is my daughter... She says well she should look more like a girl! and Jess says You did not just call me a guy! I have cancer, and that lady says so!! Oh wow then it started. She told Jess to grow out her hair and not wear a hat so that people could see that she was a girl and that she has had cancer and look at her and three of her friends have had cancer and they never looked like her. It was like so freaking crazy!! I yelled at her some but Jess let her have it but that lady didn't care she keep cussing and cussing at her. Jess says look at my face....Do I look like a guy (Jess has all her makeup on perfect) and she was like I can't see it with that damn hat pulled over your eyes!! It was like out of a movie or something. Shane came back and was like Wow but he really didn't know what was going on. Jess and that lady was screaming at the tops of their lungs now at each other and we kept trying to ignore her and then she would say something stupid or mean about Jess again. Jess keep telling her to shut up and quit being stupid and she was calling us stupid bitches.. Wow, you all should of been there. Then I got to laughing so hard cause I couldn't believe this woman! It was so insane!! but I could also see that it bothered Jess... That is what we get for going to Wally World I guess... Well you all have a super 4 th of July!! Thanks goes out to all of our veterans and troops. May God keep them safe. Love to all, Cindi

Thursday, July 1, 2010

July 1st! Wow has time been flying...

Good evening all!

Well Jess felt a lot better today. Yesterday she was super tired and just not feeling up to par. She took long naps all day. I tried to make sure that she was drinking some yogurt drinks and Boosts. These pills seem to take her appetite away even though Jess says "Dang it, I'm not losing any weight though! " lol I think that this darn steroid weight might be hard to get off..... She came over today and we did some stuff around town and she washed her horse. She had to take breaks now and then but she got it done. I'm kinda worried about her showing him at the show July 11th-12th but she is bound and determined to do it. I think that I have her talked into just western though at least so that makes me happy. English is hard to ride with no strength and I don't need her coming off of a horse. But anyways she is taking her chemo pills everyday. I think that she has about 5 days left so not bad. But anyways I will let you go. I will let you know how she is doing tomorrow. Please keep her in your prayers. Love to all, Cindi