Tues the 8th

Well we headed over to Medford to get chemo this morn but after getting her blood drawn from her port the doctor said that her white cells were to low to do anything. She was really upset because they hate for us to drive all that way and then not do anything but she really didn't expect the blood to go down again after it had been coming back up on Friday of last week. She actually thought about trying to get the spinal done today but she knew that it would be hard to get set up at such short notice and she was kinda afraid of doing it with the cell count but she wanted to do something. lol Soooo... now chemo and spinal will happen next week. But tomorrow and Friday Jess is set up to go get her blood drawn up at Sky Lakes to make sure on the white count because if it gets any lower she will have to get the two shots to bump up the count and to tell you the truth you can see that they really don't want to give it to her unless they really have to. It was funny cause all the chemo nurses were like "where you going?" "why aren't you getting treatment?" "you're not really going home now are you?" lol they treat her like a little queen of the center and I know it is because of her age but it makes me smile cause I can see that Jess really likes them and vice versa. The one nurse told us that after Jess goes to Portland and they get the results and new prodical that they ALL (like around 10 - 12 I have noticed) have a meeting with her doctor in Medford and speaker phone with her doctor in Portland to go over everything cause they don't even carry her type of chemo and they have to special order everything cause it is all pediatric. So I've rambled on enough for tonight. I will let you all know how her blood is tomorrow. Please keep her in your prayers! Love, Cindi

Monday Morn the 7th

Hi everyone,

Well Sunday was a major rest up day. Jess had been super tired so she just laid around and tried to catch up on her rest. She was feeling okay except for that so I felt pretty good about her. (not so stressed) Hopefully this will all get easier after we go to Portland on the 22nd. I'm sure hoping so. This coming week is going to be long and I'm not looking forward to it at all. We start off with chemo tomorrow about 10:45 and then spinal at 10:30 on Weds so I think that we will just spend the night. It makes for a long week driving back and forth with someone who just really isn't feeling well. And with her getting a spinal I like her to be well rested :( Well I will let you all go. I have a lot of catching up to do around the house. It was so busy this weekend. Please keep her in your prayers! God Bless, Cindi

Graduation Day!

Today was an amazing day!! Shane had an awesome graduation, Gabbi, his girlfriend from Portland came down to go to it and the best thing of all was that Jessi went with us and enjoyed it all!! That was kinda a rambling sentence but you guys get it! lol Jess was having a super good day so we were so happy. Everyone that seen her commented on how gorgeous she looked :) It is funny how bad she can be and then she picks right up. She is so strong and this is why she is gonna beat this thing!! So it was a good day and we are going to go watch the seniors bowl as long as Jess feels okay and doesn't get to tired. So I will let you all go and thanks for checking in. Jess has chemo Tues-Fri next week plus another spinal on Weds! I really think that this is number eighteen! So please keep her in your prayers. Love, Cindi

Fri the 4th

Well Jess and Jon just got home from chemo in Medford... She actually looks a lot better today. THANK GOODNESS!! I was so worried to see her come walking through the door but when I did I could instantly tell. I think that it is just her strength. She is so strong. The doctor said that her white count had come up enough that she doesn't have to have that cell regenerating shot :) :) I was so happy to hear that. They are still waiting for her chemo pills to come. I guess that they are a special order and we are hoping that the insurance is going to pick up most of the bill.... If not we aren't sure what we are going to do yet. So she is planning on going to Shane's graduation tomorrow which still makes me a little nervous but she is so stubborn. lol Then we have four days of chemo next week starting on Tuesday. I'm pretty sure that I will be taking her everyday because I'm off now. Sooo..... long week for me too! Please keep her in your prayers and I will keep you all updated. Thanks! Love, Cindi

Thursday June 2nd

Well Jess had an okay chemo day but let me tell you she is showing a lot of exhaustion. It scares me to see her like this but she is determined to get her 3 weeks done and over. She looks so tired and sick of all this but she never says a word. I of course, on the other hand is basically a blubbering mess. I think about her and I cry, after I see her and she leaves, I cry. I talk to other people about her and I cry. I just don't know what is wrong with me.... Well I was hoping that Pat would get to see the doctor today but nope that is tomorrow...and of course neither Pat or I are going tomorrow! So it will either be Robbie or Jon (can't farm with the weather) I'm not sure which one is taking her as of yet. She will get her chemo and blood check tomorrow and then on Saturday they are giving her the shot to help with the white cells. She is going to try to make is for Sat afternoon up at Sky Lakes so that she can make it to Shane's graduation. But I'm not so sure that she should even go with her counts. I guess we will see what it is tomorrow. She could prolly go if she wore a mask but she doesn't like people staring at her sooo..... I just don't know. Well I will let you go. Please keep her in your prayers! Thanks everyone! xoxo Cindi

how bout 3 steps back....??

well today was a totally rough day... I couldn't help but cry off and on. I know that I'm super tired of all of this and I can't even imagine what my daughter and son in law are feeling... First off the spinal was two hours off as they ordered the wrong chemo?? how did they do that?? Kinda makes me worried.. Then they had to poke her two times in one arm and one in the other to get blood.. Didn't I say that she had a port and they are supposed to use it? I don't know what is going on lately over there. I'm sure glad that I'm off as of Friday so I will be able to do the chemo runs next week and keep an eye on everything. Then she had chemo over at the cancer center which went okay but why is she getting chemo if her white cells are so bad?? All this chemo is only going to make it worse.. So Dad has the trip tomorrow so I told him the questions that I wanted asked. Jess didn't get home until about 5 pm tonight and they have to leave at about 9 am tomorrow so it will be a long week for her. I just thought and prayed for her all day and it just makes me super depressed. I just want to grab her and hold her tight and take it all away.. Well I will let you all go and I will let you know how it goes tomorrow. Please put her in your prayers! Love to all, Cindi

Couple steps back... 6-1-10

Well Jess headed over to get her chemo today and found out that her white cells are dangerously low. (Now we know the hair loss reason) So the doctor was very concerned and she is going to be keeping an eye on them this week and then she might have to have a shot to get them going again. But we are concerned because when you do that to the cells it also helps the cancer cells but she is in remission so hopefully everything will be okay. The doctor said that she wanted to give the shot on Sat after chemo this week but guess what??!!? That is Shane's graduation so she is very upset and she is going to talk to the doctor about it. Jess said that if she didn't get the shot and this new chemo knocks her cells down any further that she could end up in the hospital again and that upsets all of us :( I swear if it isn't one thing after another. When she got her blood drawn today they were supposed to use her port but the lady that keeps track of that stuff had it drawn out of her arm and that is a big no no with Jess and I guess even with Jess telling her she still had it done and it took three tries for the tech to do it so the doctor had a very upset talk with Bobbi (she is the one that is supposed to know all the stuff) That just opens Jess up for infection. So I bet that it doesn't happen again and hopefully Jess doesn't catch anything. They also gave Jess two bags of fluids so Jess said that she is feeling really water logged. Her and Jon stayed the night since she has her spinal in the morning at 8:30 am and then chemo at 11:30. I can't believe all that she is going through. They also want her on chemo pills but right now they say that they aren't covered by insurance so the kids don't want to pay about $500 for them so we will have to see what they come up with. The doctor was putting in some calls. So I will let you all know how she is feeling tomorrow. She just text d me and said that she was super tired and her head was fuzzy. So hopefully everything clears up. Please keep her in your prayers! Love, Cindi